Research

The National Person-Centered Assessment Resource (PCAR)

Agency: NIH/Northwestern University
Agency Award Number:

With its five subcontract sites, Northwestern University proposes to refine and sustain a research resource infrastructure that will educate and enable researchers and other interested health professionals on the use and interpretation of person-centered health outcomes. Person-centered health outcomes are those that are reported or performed by an individual research participant or patient, and that have importance to the quality of life of that participant. We refer to this resource as The National Person-Centered Assessment Resource, or PCAR. Specifically, PCAR will support the use and enhancement of four measurement information systems, currently funded as separate NIH programs: The Patient Reported Outcomes Measurement Information System® (PROMIS®); The NIH Toolbox for Assessment of Neurological and Behavioral Function (NIH Toolbox); The Neurology Quality of Life Measurement System (Neuro-QOL); and The Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Across our six performance sites (Northwestern University, University of California at Los Angeles, University of California at San Diego; University of North Carolina, University of Pittsburgh, and American Institutes of Research), we possess all of the necessary capabilities to perform the tasks designated in RFA CA-13-008.